Different autistics have different experiences of oppression and masking. A while ago me and my autie friend F were discussing the main character of the Swedish-Danish series The Bridge, who is autistic. My friend commented that she would like to live in a society where people were allowed to be weird like that character did.
To me on the other hand, the character seemed to be “allowed to be weird”, but she also seemed lonely. I have lived in her society, and for me it was lonely. Like the autistic character but unlike F, I grew up in a family where very different people were accepted. For instance, I was never discouraged from playing alone or wearing boys’ clothes. However, the condition on this freedom was that I must not need anything from others, I must not be affected by others, I must not be “weak”.
In other words, it was ok to be different, but it wasn’t ok to need the extra assistance that often comes with being different. While the social model of disability states that disabled people don’t have more needs than abled people, they certainly have more noticeable needs. And in a society which values individuality and independence such apparent “dependence” on others was very frowned upon as something which reduced your worth somehow.
So, I couldn’t have “special needs”, including needing help to deal when some people treated me in negative ways because of my differences (ableism).
As I have detailed in another post, I reacted by becoming extremely independent and rejecting many of my fundamentally human needs. For instance: I wasn’t accepted in social groups – I decided I didn’t need belonging. I didn’t have any protection from the incoming stimuli – I dissociated and decided I didn’t need interaction. I wasn’t allowed study in a way that worked for me – I decided I didn’t care what people thought of my performance.
Disconnect from others in this way, and retreating to your own world is not an uncommon reaction to being in an overwhelming environment without support. In “Nobody Nowhere” Donna Willians writes about using this coping mechanism during her autistic childhood: “‘My world’ may have been lonely but it was predictable and came with guarantees”.
In an important way I was allowed to be weird: I wasn’t bullied and people didn’t attempt to make me “normal”. But this freedom was given on the condition that I was numb enough to tolerate living in a world that wasn’t adapted to me without support. Ironically the price I paid for being seen as a whole, worthy person was an ability to be seen, and see myself.
To the outside I looked extremely independent, and in a sense I was independent from others, but I was also completely adapted to what society thought was acceptable – different only in the ways that also meant needless. There is also an irony in a society that coerces people to be “independent” from others in this way. How independent are you if you are coerced?
Denying my needs made me thick skinned, alexithymic, dissociated, sometimes cold. I learned that my needs didn’t matter, that I was too much for other people to handle. With time I became depressed.
And through all of it, I didn’t realize that the extent to which I was doing this – numbing myself, making myself invisible. When everyone else thought I was acting from desire (I just seemed to love being on my own etc.), how was I to know I was acting from necessity? How was I to know that not everyone else denied their needs in the same way as a sacrifice to be seen as valid human beings?
When I reached young adulthood I found some settings in which being invisible and numb wasn’t enough if I wanted to be “a successful adult”. So I learned to fake it, to put on a neurotypical mask. I wasn’t perfect at it of course, and it took enormous energy, but I was good enough at it to get by.
While this was hardly ideal, we can create ourselves partly through the personas we put on, and I learned some things about myself through this experience. I learned for instance that showing some emotions can actually be pleasant for me.
This experience, along with finding validating friends, made me realize that the unemotional, invisible, needless person I had been for most of my life had not been all of me. In searching for answers regarding who I actually was, I found autism.
Not “faking it” is not enough to be “who you are”
For me, realizing I was autistic meant realizing two things. The first one is standard for all autistics: I learned that I was different – I had different needs from others. For instance, I can’t tolerate the same levels of noise and I find social interaction more difficult than others to learn.
The second realization that came with the autism label was that in some very important ways I was the same as everyone else – I rediscovered those “normal” needs that I had denied in order to get through the world in an independent manner as a person with differences:
It wasn’t the case that I didn’t need to connect with people, I had just learned to do without. It wasn’t the case that I didn’t need my feelings to be taken into account, I had just learned to do without. It wasn’t the case that I didn’t have a need for self expression, I had just learned to do without.
Buried under an unemotional shell were deep feelings. I realized that just like everyone else I had a need for acceptance, for community, for social support, for comfort etc.
While my differences were in some sense accepted by my family growing up, the combination of these differences and normal human needs was not. Most of my upbringing I was not pretending to be neurotypical, and yet I wasn’t able to truly be myself either.
So when my friend F tells me she wishes she was allowed to be weird I think… I wish I was allowed to be weird And have the needs I have. To be weird And be interdependent. How do I go about combining these two? More about that in the next post.
“Nobody Nowhere” (book) by Donna Williams